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我33歲在台灣,因為工作得到矽肺症還併發了肺泡蛋白沉積症aPAP,肺功能最後一次測剩28%已無法工作,有三個小孩所以老婆的收入沒有多餘的錢讓我存未來幹細胞治療的錢。
台灣的保險也沒有理賠幹細胞醫療,我很害怕當藥物試驗完了我沒有足夠的錢可以去做治療。
不管是矽肺還是肺泡蛋白沉積症都是孤兒病目前有效的藥物跟治療方法都還在臨床試驗,就算試驗完,剛上市的試驗藥也是很昂貴的費用,實在無力負擔。
希望大家給我活下去的機會
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What is Airfunding?
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