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My Fight Against Plexiform Neurofibroma

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Goal $1,500

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the flag image of country Sherisse Alexander


I am Sherisse Alexander, a 27yr old young lady from Trinidad and Tobago. For approximately 6yrs now I have been living with Plexiform Neurofibroma which a rare and incurable nerve disorder. My nerves are forming lumps or tumors which cause a lot of pain and discomfort on a daily basis. 

Over past 6yrs I have tried several different types of treatment. Acupuncture, massage therapy, countless painkillers and nerve tablets, herbal medicine, exercising, reflexology and dieting. However, my health has continued to deteriorate. At the age of 27 I am drastically underweight (73.8 pounds). I experience insomnia, great difficulty standing and walking and now have to use a cane for assistance. I have disc bulging and inflammation in my lumbar spine. I can no longer straighten my left knee due to lumps in that region and I am almost always in some sort of pain or discomfort. 

I recently had to stop working because a lump has developed on the instep of my left foot which makes it even more difficult to move around and stand. Because we have exhausted our pain management options, my doctors are now considering surgery as the next possible step. I am required to have two MRI procedures done for by the 15th January, 2021 which is the date of my next appointment at the San-Fernando General Hospital. The total cost of the MRIs is 7800TTD. 

Depending on what the MRIs reveal the doctors will be able to determine whether or not surgery is necessary and if such a procedure can be done locally. 

I am now trying to raise funds through different fundraisers and small bake sales etc to cover the cost of the MRIs. My family and I are also trying to put additional funds in place just in case an emergency surgery needs to be done. 

For 6yrs my family and I have handled all of my medical bills independently however, it has come to a point where we require more help. 

I would greatly appreciate any form of assistance given. Thanks in advance and God bless you! 

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