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My Daughter's Rare Congenital Disorders A Hope for Mobility

Collected amount

$146
9%
Goal $1,500

Remaining days 170 days

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Hello everyone,

Baby Saj was born at 36 weeks of gestation, with a RARE CONGENITAL DISORDER called Arthrogryposis Multiplex Congenita (AMC), a variety of conditions involving multiple joint contractures (or stiffness). A contracture is a condition where the range of motion of a joint is limited.

It may be unable to fully or partially extend or bend, ASIDE of having this rare condition she has ALSO suffering form Brachial Plexus Injury (Erb's Palsy), It’s typically caused by a physical injury during newborn delivery or by traumatic force downward on the upper arm and shoulder, damaging the brachial plexus or the network of nerves near the neck that provide movement and feeling to the shoulder, arm, hand and fingers.

Due to her rare congenital disorder (AMC) & her Birth Injury (Erb's Palsy) , It's been a LONG - LONG ROAD thus far, filled with treatments, surgeries, and therapies all to help her GAIN the most range of motion in her limbs and the best chance at INDEPENDENCE and MOBILITY as possible. 🙏🙏🙏

Baby Saj will soon be having a major surgery on both of her legs & feet

Baby Saj will soon be having a major surgery on both of her legs & feet in order to correct what was preventing her from walking. Because her condition is RARE, there are very FEW surgeons in the world who know how to properly treat it. We are looking forward to one of the top surgeons, Dr. David Feldman, which was located at The Paley Institute in West Palm Beach, Florida.

Please support us for the treatments and surgeries

We are hoping & praying for a HUGE success for her treatments & surgeries,, BUT this process has required numerous trips back and forth to Florida from the Philippines and tons of therapy (of various types), :( UNFORTUNATELY, we CAN'T AFFORD THOSE EXPENSES & NONE of our medical & travel expenses will be covered by any insurance 💔😭😭

We'll be forever grateful for your help, love and support

So , I am here to seek 🥺🙏HELP & FINANCIAL SUPPORT for my daughter's INTERNATIONAL MEDICAL TREATMENT & TRAVEL EXPENSES. We ,as a Mom/Dad/Parents , we wanted to give all of our BEST, POSSIBILITY & HOPE FOR SUCCESS to happen for our children, I may not have big money to cover all her expenses BUT, HAVING THIS DETERMINATION & STRONG FAITH I believe that thru God's grace, and TO ALL Of the VERY GENEROUS KIND HEARTED PEOPLE OUT THERE WILLING TO HELP & SHARE a happy LIFE for our daughters MEDICATION AND TREATMENT this will be GRANTED TO our daughter .🙏💞🎗️WE ALL THANK YOU FOR GIVING our DAUGHTER a CHANCE OF HAVING A HAPPY LIFE & WE will be FOREVER GRATEFUL FOR YOUR HELP, LOVE, SUPPORT & GENEROSITY FOR OUR DAUGHTER's TREATMENT.😊🙏🎗️

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