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Funded!

Help me fight SMA! I want to survive!

Collected amount

$109
7%
Goal $1,500

Remaining days 0 days

This project has finished.

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Hello! My name is Ilya Khudoba.

I am 3 years old and I live in Russia. I have a rare genetic disease, spinal muscular atrophy - SMA.

This disease takes away my strength, muscle neurons gradually stop working, I cannot walk, I cannot eat, sit and raise my arms. Soon all organs stop working, and children with such a diagnosis are doomed to death.

The only solution and medicine that helps with SMA is Zolgensma.

But it is very, very expensive - $ 2.3 million. Russia does not buy the drug for me from the budget.

But I want to survive, and I have a chance to be cured and become a normal child.

I do not want to die, but SMA patients have no breathing may stop at any time, because it is also regulated by the muscles!

Help me and my parents, who love me very much, raise money for an injection of Zolgensma!

I would be happy if you would use the [Help by sharing] button to share with my project!

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