Everyone with Genesis!

Hello,

My name is Génesis Buendía I was born on January 1, 2018, like every baby I started my normal life, I babbled, crawled, interacted while playing with other children, I was full of joy and life. I attended school with my friends in nursery school 1, my medical check-ups were normal and my growth was very well developed.

However, around three years to be precise I began to have difficulties speaking, walking, I stumbled senseless and had imbalance and insecurity, and the pain in my legs was increasing, reasons for which my mother was alerted, So we started with endless continuous visits to the doctor, we could not find a specific reason for what was happening with my body.

After several tests I had a physical and neural examination in which they detected a strange disease to be precise on February 10, 2021 I was diagnosed with Metachromatic Leukodystrophy (MLD) of genetic origin and congenital in nature, my disease is progressive and very aggressive and attacks my central nervous system, which is made up of the brain and spinal cord, my symptoms each time become of the gradual type and my body deteriorates day by day, some of my symptoms were the deformity of my spine (scoliosis ), I lost my muscle tone, due to this I suffer from spasticity (muscular rigidity) my balance and mobility when walking have been completely deteriorating as well as my speech, my swallowing reflex worsened to the point of using a gastric tube to to be able to feed myself, due to the demyelination in my brain I have very severe seizures and my vision has been degrading.

My disease has no cure and the treatment that is used seeks to alleviate my symptoms which may include: medication to control my muscle tone, decrease seizures, physical and occupational therapies to improve my mobility, nutritional therapy for my problems. my eating and difficulty swallowing. There are several types of clinical trials that are being carried out throughout the world with very good encouraging results, but at the moment in our country they are not accessible.

Without thinking after this a heroine is born inside me since every day I fight against my mortal enemy (LDM). My family and I don't give up and we don't lose hope either. My story can encourage and infect many people and is a clear reason for constant struggle. The enemy (leukodystrophy) has won many battles in my body, but my soul and spirit are always ready to fight.

In order to continue with the treatment we ask as a family that you join in solidarity to be able to continue paying for the purchase of medicines which are for medical treatment purposes. God will bless you and multiply this noble cause ...

Everyone with Genesis !!…

You can make your donation through the Banco Agrícola savings account 003113576327

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