Low Blood Sugar Baby needs Php17M/ $350,000 operation for pancreas

This is my daughter, Daphne Bree Solitario, also known as Sugar baby. She is diagnosed with the following:

Congenital Hyperinsulinism (persistent low blood sugar - very rare case)EpilepsyGERD (persistent vomitting)

She is now 1 year old and is currently residing in Cebu, Philippines. She is by far the first case diagnosed in our city. 

To cure her high insulin resulting to low blood sugar, she needs to undergo operation for Pancreatomy. However this is only available in US (Children’s Hospital of Philadelphia) attach hospital estimated expenses for reference which is $340,000.

Even her main medicine, Diazoxide, is not available also in our country. 

She is experiencing seizures and painful tics almost everyday. She also vomits more than 3x a day because of her GERD. 

She eats through an OGT or tube on mouth. However we are already advised to have it transfered and place a tube on stomach ASAP which would costs about $1,500.

She is continously feed every 2hours even at night and midnight. Me and my husband exchanges sleep since we dont have any helper. 

She is continously feed every 2hours even at night and midnight. Me and my husband exchanges sleep since we dont have any helper. 

Her maintenance are also expensive and our incomes are always exhausted.

Medicines and Maintenance Expenses per month

Diazoxide

$188-$200

Trileptal

$36

Phenobarbital 

$7

Hydrite

$36

OGT (oral tube feeding)

$22

Duoderm

$11

Transpore

$4

Gauzepad

$3

Glucose Tablets

$11

Total Per Month:  $330

She is a very lovely fighting baby and loves to go to beaches. Although she has developmental delays and we seldom see her smile but she shows it off when were out at a beach. (Our country is blessed with beautiful beaches)

I am a first time mom and I have been experiencing this roller coaster moment and its really overwhelming. I love my baby so much, so much that its hurts so bad to always see her in pain. 

You reading our story and even a small prayer is already a big help to us. 

“A kind gesture can reach a wound that only compassion could heal”

I would be happy if you could use the [Help by sharing] button to share about my project!