Remaining days 15 days
I'm Maria Bernarda Estevez, 38 years old. I'm a physician in Quito, Ecuador.
I obtained my master's degree in Health Science / Endocrinology Clinic Brazil with a scholarship from SENESCYT (National Secretary of Science and Technology) of Ecuador in 2016.
I am currently the vice president of FEPAST, a foundation to help patients with Turner syndrome in Ecuador.
It affects one in 2500 female births. It only exists in women because the alteration (total or partial loss of inherited information) is in one of the X chromosomes that have information for normal development of the reproductive system.
FEPAST got recognized legally on 2001, has a nationwide reach in Ecuador, and has 150 members with different levels of participation.
FEPAST has among their functions, to support the welfare of people with Turner Syndrome and make it easier to get the information and knowledge that patients need to keep their health, and to be a gathering space for patients to have relationships with people with the same condition.
Our activities with patients include scientific workshops and counseling.
In addition to advisory and information services, we will need to hold cultural events and more scientific workshops on Turner syndrome.
This type of activity will help the Ecuadorian community to better understand women with Turner syndrome that will ultimately shape better future well-being for all.
Any small amount of help is very important to make our dream come true.
To learn more about Turner's foundation or syndrome, write to email firstname.lastname@example.org.
You would make me very happy if you used the [Collaborate sharing] button to share my project!
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