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Story
My name is Emiliano, I am a child with MPS 1 (mucopolysaccharidosis type 1), it is a very very rare syndrome that was diagnosed when I was one year old and I am currently 7 years old, the treatment is TRE (enzyme replacement therapy) I have already 6 years with the treatment every week my parents took me for my "life droplets" but there are times that they cannot afford the transportation costs because the hospital that they treat me is 4 hours from where I live, the disease affects many parts and organs body, in fact I walked but I stopped doing it because of knee and hip problems, I take some operations.
With your generosity, my parents will be able to continue giving me a better quality of life and stop the progression of my disease, thank you very much.
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