My son needs an operation on the brain of Hypothalamic hamartomas

Hello, dear friends! My name is Kamshat. Just 2 months ago, my son Mardan was diagnosed with a very rare type of disease: a Benign brain tumor of the HYPOTHALAMUS HAMARTOMA.

Mardan is a very cheerful, hyperactive, versatile, precocious smart boy, as well as an athlete.

This is one of the rare congenital malformations that occurs in 1 in 200,000 people.

Although the tumor is benign, it is located in an important part of the brain, because the hypothalamus is the human soul, the part of the brain that controls our feelings, the hypothalamus is responsible for such vital functions of our body as, for example, hunger, satiety, thirst, temperature, sleep, emotions, memory. Without the hypothalamus, we wouldn't know when to eat and we'd be starving. The hypothalamus controls the endocrine and autonomic nervous systems of the body.

At the age of 10 , like a bolt from the blue, he began to have the first epileptic convulsions, there were strong attacks: he suddenly froze and struggled for several seconds in convulsions, hands and feet cramped. This happened several times a day, and after the attack Mardan fell fast asleep, and when he woke up, he did not remember anything.

The exact diagnosis was made after MRI of the brain and electroencephalogram: a rare benign tumor-hypothalamus hamartoma, which causes seizures. The son was prescribed anticonvulsants, and the convulsive attacks almost stopped. But every day he continues to suffer from violent fits of laughter-crying. The doctor said that pills can't remove them. Medication for this disease only slightly relieves the condition, but it will not completely eliminate the attacks and their consequences. Because of the hamartoma, the child's development stops, and then rolls back. The only chance to recover is to have surgery.

Treatment and surgery is only possible abroad. We were in a hospital in Shymkent and at the Institute of Neurosurgery in Nur-Sultan. Our doctors could not help us, we do not perform such operations, because there is no special device for this. We also went to Germany 2 weeks ago. In Germany, the doctors refused to perform the operation and recommended that we do it only in America.

The Texas Children's Hospital is ready to perform surgery on our son, but the amount of surgery was too much for us. If we sold our house and car, we wouldn't be able to pay this amount.

Dear readers, concerned people, we ask for your help. Help us save our little boy. The queue for this operation for the next six months is large and we only have a month to collect the necessary amount. It is very important to raise money as soon as possible удаление removing This tumor will save his life

Each attack affects him very badly.

All information you can find here @help_for_mardan ?

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