We urgently need a bone marrow transplant...

The family Galiullina from the city of Ufa. It so happened in their lives that both small children are sick with a rare fatal genetic disease-Metachromatic Leukodystrophy.

They found out about this in October 2019. To say that she and her husband were heartbroken, nothing to say... It was as if the weight of the world had fallen on their heads... Daughter Agatha is 5 years old and she already has all the signs of the disease-Agatha does not walk, her legs have failed, her speech has disappeared and now Agatha does not speak, hardly holds her back, but understands everything... 

The son of Radmir (he is 2 years old) has a pre-clinical stage, that is, the disease has not yet started, but if nothing is done, the baby will repeat the fate of his sister... The only proven way to stop the disease today is a bone marrow transplant.  According to the VMP quota, they and both children were hospitalized in the RDKB of the Federal state budgetary educational INSTITUTION of the Ministry of health of Russia for 10 days, where the daughter was refused TCM almost from the threshold, as there are already complications and they were afraid to do anything...The son was taken for TCM, but unfortunately they did not find a donor... and so they prescribed treatment and were discharged home... In parallel, they applied to foreign clinics. And the doctor is the transplant coordinator Irina S.Zaydman from the Israeli Hadassah hospital gave an answer. And after consultations, I took both children for a life-saving bone marrow transplant! In Israel, their children have already been HLA-typed, and both found 100% identical donors, this is incredible luck! The only thing - the Israeli clinic put up huge bills for their family-220,000 dollars for each of the children... 

For an ordinary family where the father is a programmer, and the mother is a housewife-this amount is unaffordable, unrealistic... These two little suns are all we have. Radmir was helped by the Foundation and raised the necessary amount... Agatha unfortunately no one helps.  And they have no right to give up! We appeal to You for help, please help Agatha! We will be grateful for any help!

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